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Polio Update
3
In the News
Post-Polio Health
International Conference
Exciting news! The 10th
International Conference
of the Post-Polio Health
International will be held at
Warm Springs, Georgia from
Thursday, April 23, 2009 through Saturday, April 25, 2009.
This is an opportunity to hear from a huge number of world-
renowned experts on polio, its late effects, and related topics.
Among the large number of planned topics are “Understanding
Poliomyelitis”, “Techniques to Accommodate New
Weakness”, “Effective Family Communication”, “Bene? ts
and Techniques of Aquatic Therapy”, and “Yes, You Can
Practice Yoga”. For more information, you may contact
Post-Polio Health International directly by calling 314-354-
0475, checking its website at www.post-polio.org, e-mailing
at info@post-polio.org, or writing to 4207 Lindell Blvd.
#110, St. Louis, MO 63108 for a registration packet.
Recent Pilot and Research Studies
According to Rick Zucchero who wrote into the Post-Polio
Med ListServ, there may still be openings for a study about
PPS and cognition. It is necessary to visit the clinic twice.
The study will look at people with a history of polio, but
without post polio syndrome, who are doing well, and
compare them with people who have PPS. The testing is to
help determine if there is a difference in performance in terms
of how much fatigue each group experiences in cognitive
tests. If interested, you may contact Janet Goodard at the
John Murtha Neuroscience and Pain Institute in Johnstown,
PA at 814-269-5288.
In a recent research, a Swedish group was pursuing the
impaired quality of sleep in post polio patients ventilated
noninvasively (NIV) vs. invasively. No differences were
found between the groups regarding blood gas parameters
neither before nor during or after the study period. Post polio
patients treated with invasive home mechanical ventilation
seem to experience better sleep and less sense of tiredness
than patients on NIV. These differences cannot be explained
by differences in alveolar ventilation as assessed with blood
gas analyses. Found in Scand J. Caring Science 2008 June:
22(2):236-40.
In another study, 27 PPS participants, apparently in England,
completed a 9-day multi-disciplinary rehabilitation program
with follow-up at 3 and 6 months, to measure muscle strength
and endurance. Results: There was no signi? cant change
at six months for muscle strength or anxiety. However,
there were signi? cant improvements for exercise endurance,
depression and levels of fatigue. Prolonged bene? ts were
found for physical, psychological and functional outcomes.
A qualitative study is now planned. Found in Disability &
Rehabilitation 2008 May 21:1-9.
Bruising and Aging
An article in a 2005 issue of Healthy Living mentioned that
the older we are, the more easily we bruise. Aging and sun
damage weaken tiny veins, which are easily broken, causing
bruising. According to the U.S. Army Medical Department,
bruising also takes longer to heal in older people. Those
black and blue areas are caused from blood seeping from the
veins into skin tissue, and without oxygen, the blood turns
dark blue.
Director Retiring
We?re sorry to see our Board Member, Lucy Morin, retiring in January. She has been our Treasurer for the past three years,
and we will all miss her. She wants to be able to focus more time with her husband and family—here?s wishing you some
great vacations!
“Happiness is the result of making a bouquet of those ? owers within reach.” Proverb
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