2
Polio Update
continued from page 1
Pulmonary Care
Dr. Nicholas Hill spoke about the various breathing, sleep and swallowing issues
experienced by those with late effects of polio. If you are experiencing problems
with sleepiness in the morning, headaches, congestion, or simply not feeling well,
proper respiratory tests may be necessary. As some health professionals are not tuned
into the issues of PPS, you may need to ask for other tests, or to seek other health
professionals. In some instances, the results of a test may be misinterpreted, and a
prescribed treatment could make the situation worse.
Parts of the respiratory system that may possibly be affected by polio are
• Respiratory center (breathing pattern)
• Bulbar muscles (speech and swallowing—swallowing of liquids may be especially
troubling)
• Inspiratory muscles (diaphragm, chest and neck—especially when lying ? at on
back if diaphragm muscle is weak)
• Expiratory muscles (abdominal and chest—necessary for proper coughing)
Typical symptoms of respiratory involvement by those with PPS include 1) shortness
of breath –with exertion, at rest and/or positional; 2) noisy breathing—wheezing or
choking; 3) sleepiness or non-restorative sleep –snoring, morning headaches, fatigue,
inability to concentrate adequately, sleep apnea. An evaluation should include a
medical exam, pulmonary function tests, sleep studies, oximetry (where percentage
of hemoglobin carrying oxygen is measured, with ideal levels at 95%-97%), tests for
blood gases, and other possible tests, such as spinal x-rays and laryngoscopy.
If certain respiratory muscles are weak, muscle training may help in breathing or
swallowing, or even certain deep breathing exercises. The next step might be the use
of continuous positive airway pressure (C-PAP) machines, or BiPAP machines which
apply lower pressure during exhaling. If carbon dioxide levels are very high, a BiPap
machine may be more effective. He recommends to start using either machine very
slowly, with lower pressure, perhaps even in daytime for an hour or two to get adjusted
to its use. Also, cough assist machines help simulate the physiologic mechanism of
cough, and will help if phlegm is accumulating in the lungs.
Dr. Hill urged us to keep ourselves as healthy as possible to enable us
to function as well as possible. He recommends that we take good care
of ourselves by exercising regularly (to the level of our own abilities),
avoiding overweight, getting suf? cient rest, avoiding smoking,
avoiding people with colds whenever possible, getting annual ? u
shots, and getting pneumonia shots. (The requirements have changed
regarding pneumonia shots---if you had a shot when you were under
65, then you should get another one after age 65, OR if you have one
after 65, then it should be OK for life---check with your own doctor
for his/her recommendations and the period of time to wait before a
second shot if your ? rst one was before age 65).
Diana
Abbott
(2009)
PO Box 301
Moody, ME 04054
646-2022
Reginald
Arsenault
(2009)
36 Meadow Street
Mexico, ME 04247
364-7003
rlrcno@gwi.net
Barbara Clark (2010)
6
Warren
Circle
Lisbon Falls, ME 04252
353-8931
bclark38@aol.com
William Cook (2010)
29 Overlook Drive
Milford, ME 04461
827-7252
cook1673@roadrunner.com
Ann Crocker (2010)
674 Hallowell-Litchfield Road
West Gardiner, ME 04345
724-3784
abcrocker@roadrunner.com
Dexter Eaton (2009)
37
Maple
Avenue
Scarborough, ME 04074
883-8176
brotherignatiusosb@earthlink.net
Jane Lindquist (2011)
7 Blueberry Lane, C6
Falmouh, ME 04105
781-8914
rlindqui1@maine.rr.com
Lucy Morin (2008)
806 Penobscot St.
Rumford, ME 04276
364-4646
ljmorin1@verizon.net
Katherine Reddy (2011)
63
Hennessey
Avenue
Brunswick, ME 04011
725-8170
Nancy Stambach (2009)
4
Woodcock
Drive
Topsham, ME 04086
729-4297
nstambach@suscom-maine.net
Elaine
Thayer
(2010)
2020 Industry Road
Industry, ME 04938
778-9621
mothersmoo@localnet.com
Connie
Tutlis
(2011)
387 Main Street
Mexico, ME 04257
364-4189
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